National Roundtable Meeting to Discuss the Development of a
National Inventory of Existing Hospice Palliative Care
Resources and Tools for First Nations and Inuit (March 2007)


The Canadian Hospice Palliative Care Association (CHPCA) has identified Aboriginal end-of-life care issues as a health issue that requires action. CHPCA currently supports an Aboriginal Issues Interest Group and provides support for an electronic list serve on Aboriginal end-of-life care issues. Hospice palliative care service delivery to First Nations, Inuit and Métis communities in Canada is complex depending on where and how these services are delivered.  Delivery of end-of-life care will differ depending on whether the client is First Nations, Inuit or Métis due to the inherent cultural differences between these groups. The location of the individual, be it urban or rural, will also affect access to appropriate services.

A Model to Guide Hospice Palliative Care: Based on National Principles and Norms of Practice is a good basic resource for those working in hospice palliative care; however, the document does not go into detail regarding end-of-life care issues related to specific groups such as First Nations, Inuit and Métis.

The Canadian Hospice Palliative Care Association (CHPCA) recently completed a project in partnership with the Assembly of First Nations (AFN), Inuit Tapiriit Kanatami (ITK) and First Nations and Inuit Health at Health Canada to coordinate a national meeting for the purpose of discussing the current state of First Nations and Inuit Hospice Palliative Care (FNIHPC) in Canada, within the context of national developments in the field. The invited stakeholders came together in a common understanding of past developments, the current state of affairs and priorities for future action. 

A Discussion Paper was developed through survey and interview processes. In addition, a two-day national meeting was held with an additional group of stakeholders to further discuss the issues and findings and develop recommendations for moving forward. Some of the action steps recommended by this project include the following: Recognize and Nurture FNIHPC Activities underway in Communities; Public Education and Awareness Building; Collection of Leading Practices; Local Capacity Building; Collaborative Training and Education; Roster of Programs and Services; Addressing Access Issues; Common and Accessible Language; Investment in Cultural Competence at all Levels; National Leadership and Funding. The specific outcomes of this project will be shared in a future issue of AVISO.

The second phase of this project was the development of a national inventory of leading edge end-of-life care resources for use within First Nations, Inuit and Métis communities. At the time of writing, the inventory contained more than 80 tools and resources contributed by the community. Many of the resources were created by and for First Nations, Inuit and Métis communities. Other resources included in the inventory are general in nature but are still relevant for First Nations, Inuit and Métis communities in Canada .  


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