VOLUNTARY SECTOR INITIATIVE
 CAREGIVER PROJECT

In the spring of 2003 the Canadian Hospice Palliative Care Association (CHPCA) began a project funded by the Voluntary Sector Initiative of Health Canada.  The project consisted of conducting a survey to identify existing informal caregiver information and resources in an effort to build a national inventory. An advisory committee was created to assist with the preparation of the survey and to oversee the project.

Advisory Committee Members 

Advisory Committee Terms of Reference 

The project’s goals were to:

1.         Survey hospice palliative care associations in the provinces and territories, local programs and services and Quality End-of-life Care Coalition members to create an inventory of resources and information to recruit and train informal caregivers.

2.         Evaluate and disseminate resources and information that will equip and support informal caregivers providing end-of-life care.

3.         Make recommendations regarding new resources and information to be developed.

The survey has identified numerous resources such as pamphlets; handouts; books; videos & CD-Roms; programs and services; networking opportunities; web-based information; referral information and other types of resources and information that is currently being used in communities across Canada.

Informal Caregiver Survey 

Informal Caregiver Resource Inventory